tag:blogger.com,1999:blog-6789664424959691903.post787827495341353701..comments2023-05-28T10:03:56.998-04:00Comments on LYME ACTION GROUP: IDSA abandons Chronic Lyme patientsLyme Action Grouphttp://www.blogger.com/profile/08062929658117009218noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6789664424959691903.post-50276733033055061292011-12-03T11:57:28.184-05:002011-12-03T11:57:28.184-05:00How do you get tested properly for Lyme Disease? ...How do you get tested properly for Lyme Disease? I have been to my family doctor numerous times describing symptoms of lyme disease and he has only sent me for testing that is non-conclusive. I have numerous symptoms of the disease and the doctors I have seen in Manitoba don't seem to believe it could possibly be Lyme Disease. When I was first experiencing symptoms I was diagnosed with mono - that was in 2008 - and my symptoms haven't gone away since, and I am experiencing more and more symptoms as time goes on. I have even had the tick mark. Who can I contact to have this looked into further before it becomes untreatable?Jimnoreply@blogger.comtag:blogger.com,1999:blog-6789664424959691903.post-2320711044825849492011-01-27T17:02:54.173-05:002011-01-27T17:02:54.173-05:00http://www.allimedonline.com/scientificresearch.ht...http://www.allimedonline.com/scientificresearch.html<br /><br /><br />seems to be the answer - it's a stabalized antibiotic from garlic and has done clinical trial, I like the testimonialsPrivate Citizenhttps://www.blogger.com/profile/13233168873467593480noreply@blogger.comtag:blogger.com,1999:blog-6789664424959691903.post-17892680459954958202010-04-30T19:21:14.539-04:002010-04-30T19:21:14.539-04:00(Here is a comment from the IDSA ) "Finally,...(Here is a comment from the IDSA ) "Finally, caution should be used in extrapolating results from European studies to North American patients, due to the well-established microbiological and clinical distinctions in Lyme borreliosis on the two continents."( Is the IDSA saying the Europeon Lyme is Chronic and our's is not?? Have we even had a study done on this???<br />Our Lyme sufferers in Manitoba have more nuerological symptoms and therefore Canada should not be linked to the IDSA Guildlines!!!!!!)<br /><br />Elizabeth Wood 204-373-2495manitobalymiehttps://www.blogger.com/profile/00481144874350226910noreply@blogger.comtag:blogger.com,1999:blog-6789664424959691903.post-71387910169107985232010-04-30T18:50:16.097-04:002010-04-30T18:50:16.097-04:00http://blogs.forbes.com/sciencebiz/2010/04/alterna...http://blogs.forbes.com/sciencebiz/2010/04/alternative-lyme-disease-doctors-are-still-wrong/<br /> Here is a statement on the IDSA site "At the request of the Attorney General, the Panel also reviewed a statement in the guidelines’ executive summary concerning diagnostic testing. The Panel was evenly split on whether the statement would benefit from modification or clarification. In its final report, the Panel offered this guidance to clinicians: “Symptoms that are commonly attributed to chronic or persistent Lyme, such as arthralgias, fatigue, and cognitive dysfunction, are seen in many other clinical conditions and are, in fact, common in the general population…???????.( Do you really believe this is a fact and if it is the general population is really sick. could they all have Lyme???) It would thus be clinically imprudent to make the diagnosis of Lyme disease using these non-specific findings alone.” On the other hand, the Panel said, “in clinical practice, the presence of certain classic complications of Lyme disease such as aseptic meningitis, AV nodal block, inflammatory arthritis, and cranial or peripheral neuropathies, in a patient with epidemiologic risk of Lyme disease and in whom alternative diagnoses have been excluded or are unlikely,( I thought that Lyme is easily treated???) may be sufficiently convincing as to constitute an exception to the statement in the Executive Summary.???????” <br />Sound pretty nasty to me. This being said How is it that no changes were made. <br />The American Red Cross is not accepting Blood from Chronic Lyme cases and will not take blood from those who have been treated for Lyme until they have been off treatment for a year. Does that tell the IDSA something is wrong with their guild lines????Northern Ohio <br />Blood Services Region <br />http://chapters.redcross.org/br/northernohio/INFO/eligibility.html <br />Lyme Disease <br />Accept persons with Lyme disease if they were treated, the disease resolved and at least 1 year has passed. <br />Those with chronic Lyme disease are not eligible to donate blood." !!!!!! <br /> <br />The IDSA admits the Europeon strains are chronic and they are different strains??? They admit that Lyme sufferers have many sypmtoms " Baker has sympathy for people suffering from the pain and fatigue associated with chronic Lyme disease. <br />"These people are suffering from something and no doubt they need proper medical care," he said. "But they are not suffering from a persistent infection that can be treated by long-term antibiotic therapy. They have something serious that needs to be treated, but it's not due to Lyme " <br />that need to be treated.???? <br /> <br />Red Cross is smart about being unwilling to accept Lyme tainted Blood.manitobalymiehttps://www.blogger.com/profile/00481144874350226910noreply@blogger.com