Friday, September 18, 2009

Wall of Hope 2009 - Toronto

Thank you to all who helped to make Thursday's event a success! Here is a sampling of photos received from attendees. Thanks to those who have sent them in. Please send in your best ones and we can add them to the album.

This post will be updated as more material becomes available. To begin with, here is coverage from the CTV National News as shown Sunday 20 September 2009. The version on the CTV website can be found here (but it doesn't include the intro by Sandie Rinaldo you will see below). And here is the accompanying written report on

Here is a link to send feedback to CTV -- please let them know you appreciate this coverage.

"They are ticked off, and they want answers..." That is the opening line of an A-Channel News report about the Wall of Hope event in Victoria, BC. Here is an email to contact the BC Ministry of Health Services and let them know what you think about the outdated and misguided information given by Minister Kevin Falcon in this interview. The protocol Minister Falcon refers to is, of course, the IDSA guidelines whose validity were seriously called into question subsequent to the antitrust investigation against the IDSA concluded by the Connecticut Attorney General in 2008. And yet our health agencies continue to cling to these narrow guidelines, completely ignoring other opinions such as those from the International Lyme and Associated Diseases Society (ILADS).

On the day of the Wall of Hope event at Queen's Park, a petition was submitted to the Ontario Legislature regarding Lyme and Chronic Lyme disease issues in Ontario. The petition addresses issues of failing to acknowledge Lyme as endemic in Canada, inadequate testing and inadequate physician training. It was signed by more than 1,400 concerned persons from across the province. The Government of Ontario is officially required to respond to this petition within 24 sitting days of the House. The video below, courtesy of the Legislature's Broadcast and Recording Service, is of the petition presentation in the Legislature.


  1. Great job all of you and great signs too!!

  2. I am a recent sufferer of Lymes Disease and I am horrified that my test 1 1/2 years ago came back negative. I am now in hospital with a confused diagnosis of cancer/ and a rhuematoid factor of 712 I'm in a wheelchair and have just received a positive result for Lymes from USA by a doctor who it about to be disbarred by the Board of Physicians Alan 905 989 1238.